Created in April 1992 by Christine Lavery, president of the MPS Society of the United Kingdom then, with the support and engagement of other MPS organizations around the world, as the MPS Society of Australia, Austria, Germany, Italy, Norway, Poland, Russia , and other organizations that have decided to unite to learn and share their experiences in each country and work to promote better care for families and people with MPS and other related illnesses. As well as working with the medical community to develop treatments so that people affected by MPS and related disorders could have a better quality of life.
We are currently seeking a Chief
As we grow as an organization, we are looking for a professional to help us create an environment within the organization that promotes creativity and helps us to achieve our mission as an international network of rare disease patient organizations.
The key aspects for this position are: