On May 15th,
International MPS Day, our network will launch the second annual “Chase the Signs” campaign, along with each country or regions’
respective
MPS day campaigns and activities. The “Chase the Signs” campaign is an industry-sponsored
campaign in partnership with the IMPSN, and that aims to project the following
message:
¨As a collective of MPS pharmaceutical industry
partners, we recognize the often long and difficult journey from the onset of
symptoms, to diagnosis, and to treatment. Our patients have complex stories but
are all heroes that navigate the maze to reach a proper diagnosis. These
stories demonstrate that each of us has a unique role to play, and it is only
together that we will make a difference in rare diseases – especially MPS.”
As we approach
another MPS Day, we have the opportunity to band together to create awareness
as an International Network. For this to be possible we are asking for all
network members to share photos, videos, stories and/or artwork of your
organization, families, caregivers, physicians and community tagging the IMPSN
social media and the hashtag #MPSDAY so we can see and share it!
Let’s work together to make the “Chase the
Signs” campaign global and inclusive on International MPS Awareness
Day.
You can access the
assets at this link: https://drive.google.com/drive/folders/1Db-u-7-HGUdYksI7OXeL2B-2FC8iCdX1?usp=share_link
Please note that
some of the files are editable and can be translated into your own language. If
you require assistance with the translation, please contact kimangel@mpssociety.ca. Once the asset or assets are translated, please be
sure to share the final version with the IMPSN so we can save it in our drive
as well.
If you have any
questions or require assistance, please do not hesitate to get in touch with us
in the following emails:
Amira Awada – amira@vidasraras.org.br
Kim
Angel – kimangel@mpssociety.ca
The IMPSN Board.
©2020 by international mps network.